A National Survey of Barriers and Facilitators to Participation in AllPlay Dance for Children of All Abilities |
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The attached statement below contains detailed information about this survey, Its purpose is to explain to you as openly and clearly as possible all the procedures involved in this project so that you can make a fully informed decision about whether or not you are going to participate. Please read the information prior to starting the survey. If you agree to take part in this survey after reading this information, we do not need you to fill in a written consent form. Your consent to participate is given by completion of the survey.
DEAKIN UNIVERSITY
To: Dance Teachers
PLAIN LANGUAGE STATEMENT
Date: 19 December 2017
Full Project Title:
Dance and children with disability: experiences of dance schools, dance teachers, parents and children
Principal Researcher: Prof. Nicole Rinehart
Study Information
1. Your Consent
You are invited to take part in this research project. This statement contains detailed information about the research project. Its purpose is to explain to you as openly and clearly as possible all the procedures involved in this project so that you can make a fully informed decision about whether or not you are going to participate.
If you agree to take part in this study after reading this information, we do not need you to fill in a written consent form. Your consent to participate is given by completion of the survey. A copy of this statement has been attached at the bottom of this page.
2. Purpose and Background
This survey aims to find out what dance teachers feel are the benefits, barriers and facilitators to participation in dance around Australia for children, and in particular, children with physical and developmental disabilities and challenges.
If you teach dance programs involving children aged 1-18 years old with disability, either currently or have in the past, you are invited to complete this survey. We want to hear from dance teachers who teach children with disability (eg. autism spectrum disorder, intellectual disability, cerebral palsy), and children who do not have a diagnosis but may be developmentally vulnerable and may need a little extra support and planning (eg. physical or behavioural challenges)
3. Funding
This survey is conducted by Deakin University. It is funded by the National Disability Insurance Scheme (NDIS) through the Information, Linkages and Capacity Building (ILC) National Readiness Grants program.
4. Procedure
If you are a dance teacher, participation will involve answering a survey exploring your experiences of delivering dance programs for children with disability. The survey will take approximately 15 minutes to complete and contains 25 questions.
The survey will work on any smart phone or computer with access to the internet.
We are also conducting optional telephone interviews with dance teachers. Should you wish to participate, you may provide your name and contact details to the researchers at the end of the survey. . The telephone interview will assist us to understand your unique experiences of teaching children with disability to dance and allow you to discuss any areas that were not covered by the survey. With your permission, the interview will be digitally recorded so that we can make an accurate record of what you say. When the recording has been transcribed, you can be provided with a copy of the transcript, so that you can verify that the information is correct and/or request deletions. This telephone interview will take around 10 minutes to complete.
5. Possible Benefits
This project may not provide immediate or direct benefit to you but may provide a better understanding of the factors relating to whether or not children with disability participate in dance. This project is important because the data collected will assist in developing resources for parents, dance schools and teachers, and health professionals to identify 1) What key factors translate to participation in dance for children with disability, and 2) What may help to enable children with disability to participate in dance and contribute to the development of AllPlay Dance which will have the resources needed to make dance programs inclusive.
6. Possible Risks
If any of the questions make you feel uncomfortable or you become distressed and you wish to speak to someone about this, please call Dr Tamara May on 03 9244 5084
7. Privacy, Confidentiality and Disclosure of Information
No identifying information from results collected from the surveys and telephone interviews will be used in publications and conference presentations with only group level or de-identified responses included. If you choose not to provide these information, responses belonging to you will remain completely anonymous and cannot be identified. Any information we collect from you that can identify you will remain confidential and will be electronically stored on password protected computers within the School of Psychology at Deakin University for a minimum of 5 years. If you agree to participate in future research related to this study your data may be stored for a longer period of time in accordance with the ethics attached to the future research study.
Only the research team will have access to this information.
8. Results of Project
On request, a summary of the study findings can be emailed to you at the completion of the study. Please email: apdance@deakin.edu.au to request this and provide your email address.
9. Participation is voluntary
Participation in any research project is voluntary. If you do not wish to take part, you do not have to. Participation in this study is independent of and separate from any involvement with Deakin University, NDIS or any clinical care received. If you decide to take part and later change your mind, you are free to withdraw from the project at any stage. If you provide identifiable information, all responses obtained from you and your child to date will not be used and will be destroyed. However, if you choose to remain anonymous, the researchers will not be able to determine which survey answers belong to you so any information collected cannot be withdrawn from the study results. Your decision whether to take part or not to take part, or to take part and then withdraw, will not affect your relationship with Deakin University, NDIS or the researchers.
Begin the survey only after you have had a chance to ask your questions and have received satisfactory answers via the contacts provided at the end of this statement.
If you decide to withdraw your responses from this survey, please notify a member of the research team.
10. Ethical Guidelines
The study will be carried out in accordance with the National Statement on Ethical Conduct in Human Research (2007). This statement has been developed to protect the interests of people who agree to participate in human research studies.
The ethical aspects of this research project have been approved by the Human Research Ethics Committee of Deakin University. The research will be carried out in the School of Psychology, Deakin University, 221 Burwood Highway, Burwood, Victoria 3125.
11. Complaints
If you have any complaints about any aspect of the project, the way it is being conducted or any questions about your rights as a research participant, you may contact:
The Manager, Office of Research Integrity Deakin University, 221 Burwood Highway, Burwood Victoria 3125, Telephone: 03 9251 7129; Email: research-ethics@deakin.edu.au. Please quote project number [2017-299].
12. Further Information:
Contact:
Dr Tamara May
School of Psychology, Deakin University
221 Burwood Highway, Burwood, Victoria, 3125
E: tamara.may@deakin.edu.au
P: 03 9244 5084
Or
Professor Nicole Rinehart
School of Psychology, Deakin University
221 Burwood Highway, Burwood, Victoria, 3125
E: nicole.rinehart@deakin.edu.au
P: 03 9244 5469
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