The attached statement below contains detailed information about this survey, Its purpose is to explain to you as openly and clearly as possible all the procedures involved in this project so that you can make a fully informed decision about whether or not you are going to participate. Please read the information prior to starting the survey. If you agree to take part in this survey after reading this information, we do not need you to fill in a written consent form. Your consent to participate is given by completion of the survey.

DEAKIN UNIVERSITY

To: Dance School/Company Representative

PLAIN LANGUAGE STATEMENT

Date: 19 December 2017

Full Project Title:
Dance and children with disability: experiences of dance schools, dance teachers, parents and children

Principal Researcher: Prof. Nicole Rinehart

Study Information

1. Your Consent

You are invited to take part in this research project. This statement contains detailed information about the research project. Its purpose is to explain to you as openly and clearly as possible all the procedures involved in this project so that you can make a fully informed decision about whether or not you are going to participate.

If you agree to take part in this study after reading this information, we do not need you to fill in a written consent form. Your consent to participate is given by completion of the survey. A copy of this statement has been attached at the bottom of this page.

2. Purpose and Background

This survey aims to find out what dance schools/companies feel are the benefits, barriers and facilitators to participation in dance around Australia for children, and in particular, children with physical and developmental disabilities and challenges.

If you are a representative from a dance school or company involving children with disability, either currently or have in the past, you are invited to complete this survey. We want to hear from dance schools and companies involving children with disability (eg. autism spectrum disorder, intellectual disability, cerebral palsy), and children who do not have a diagnosis but may be developmentally vulnerable and may need a little extra support and planning (eg. physical or behavioural challenges)

3. Funding

This survey is conducted by Deakin University. It is funded by the National Disability Insurance Scheme (NDIS) through the Information, Linkages and Capacity Building (ILC) National Readiness Grants program.

4. Procedure

If you are a dance school/company representative, participation will involve answering a survey exploring your experiences of managing dance programs for children with disability. The survey will take approximately 15 minutes to complete and contains 41 questions.

The survey will work on any smart phone or computer with access to the internet.

Information collected in this survey may be used to create a listing for your organisation in our online searchable directory of dance schools and companies that offer dance programs to children with disability. Please indicate your consent to have your information used on our online searchable directory at the start of the survey.

We are also conducting short telephone interviews with dance school/company representatives. Should you wish to participate, you may provide your name and contact details to the researchers you at the end of the survey. The telephone interview will allow us to understand your unique experiences of running dance programs for children with disability and comment on any areas not covered by the survey. With your permission, the interview will be digitally recorded so that we can make an accurate record of what you say. When the recording has been transcribed, you can be provided with a copy of the transcript, so that you can verify that the information is correct and/or request deletions. The interview will take approximately 10 minutes.

5. Possible Benefits

This project may not provide immediate or direct benefit to you but may provide a better understanding of the factors relating to whether or not children with disability participate in dance. This project is important because the data collected will assist in developing resources for parents, dance schools and teachers, and health professionals to identify 1) What key factors translate to participation in dance for children with disability, and 2) What may help to enable children with disability to participate in dance and contribute to the development of AllPlay Dance which will have the resources needed to make dance programs inclusive.

6. Possible Risks

If any of the questions make you feel uncomfortable or you become distressed and you wish to speak to someone about this, please call Dr Tamara May on 03 9244 5084

7. Privacy, Confidentiality and Disclosure of Information

If you provide permission for the information you have entered about your dance school/company to be added to our online searchable directory of inclusive dance schools this information will be publically available.

No identifying information from results collected from the surveys and telephone interviews will be used in publications and conference presentations with only group level or de-identified responses included. If you choose not to provide any identifying information, responses belonging to you will remain completely anonymous and cannot be identified. Any information we collect from you that can identify you will remain confidential and will be electronically stored on password protected computers within the School of Psychology at Deakin University for a minimum of 5 years.

Only the research team will have access to this information.

8. Results of Project

On request, a summary of the study findings can be emailed to you at the completion of the study. Please email: apdance@deakin.edu.au to request this and provide your email address.

9. Participation is voluntary

Participation in any research project is voluntary. If you do not wish to take part, you do not have to. Participation in this study is independent of and separate from any involvement with Deakin University, NDIS or any clinical care received. If you decide to take part and later change your mind, you are free to withdraw from the project at any stage. If you provide identifiable information, all responses obtained from you and your child to date will not be used and will be destroyed. However, if you choose to remain anonymous, the researchers will not be able to determine which survey answers belong to you so any information collected cannot be withdrawn from the study results. Your decision whether to take part or not to take part, or to take part and then withdraw, will not affect your relationship with Deakin University, NDIS or the researchers.

Begin the survey only after you have had a chance to ask your questions and have received satisfactory answers via the contacts provided at the end of this statement.

If you decide to withdraw your responses from this survey, please notify a member of the research team.

10. Ethical Guidelines

The study will be carried out in accordance with the National Statement on Ethical Conduct in Human Research (2007). This statement has been developed to protect the interests of people who agree to participate in human research studies.

The ethical aspects of this research project have been approved by the Human Research Ethics Committee of Deakin University. The research will be carried out in the School of Psychology, Deakin University, 221 Burwood Highway, Burwood, Victoria 3125.

11. Complaints

If you have any complaints about any aspect of the project, the way it is being conducted or any questions about your rights as a research participant, you may contact:

The Manager, Office of Research Integrity Deakin University, 221 Burwood Highway, Burwood Victoria 3125, Telephone: 03 9251 7129; Email: research-ethics@deakin.edu.au. Please quote project number [2017-299].

12. Further Information:

Contact:

Dr Tamara May
School of Psychology, Deakin University
221 Burwood Highway, Burwood, Victoria, 3125
E: tamara.may@deakin.edu.au
P: 03 9244 5084

Or

Professor Nicole Rinehart
School of Psychology, Deakin University
221 Burwood Highway, Burwood, Victoria, 3125
E: nicole.rinehart@deakin.edu.au
P: 03 9244 5469

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